In solidarity with her best friend Lorraine, our colleague, Paula Tierney was raising funds for Lorraine’s son Dylan who was diagnosed with Vulto Van Silfhout De Vries syndrome, an extremely rare disorder. Dylan is the only known person in Ireland with this syndrome, and there are only around 200 cases worldwide.
A campaign was started to raise funds in order to further research Dylan’s as well as support any specialist treatment he may need
Distilled was happy to make a €1,000 donation to the campaign which has raised nearly €20,000 overall.
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